Not Safe For Work.

Parenting can leave your personal life in tatters, your emotions wrung out, and as for your libido, well, nuff said.

Being a parent carer of someone with Additional Needs can magnify this, and many relationships buckle under the strain.

Luckily I had the foresight to marry someone 23 years ago who would easily be able to support me on this journey and who I also continue to fancy the pants off. Lucky is the operative word here, how could we possibly know at the tender ages of 25 and 26 what our lives would become? We were babies!

Anyway, that’s not the point. Despite childcare demands and the menopause (and if you are related to me you may want to LOOK.AWAY.NOW) which has had an unexpected effect on my-lets say drive-my body appears to have thrown caution to the wind, aware that reproduction is no longer a threat.

This is a brief explanation of how I nearly managed to scare a Social Services support worker, and how despite being 48 have so far failed to do grown up.

One day, after a run, I returned home glowing, and full of endorphins to an empty house. I was wearing s cute hat stolen from the eldest child (it was winter) and was looking, #imho, pretty fine.

Flinging my clothes off pre shower, I caught a glimpse of myself in the mirror and was happy with what I saw. (Oh if only I appreciated myself as much when I really was glorious in those teenage years before everything became overused and droopy, as I do now in (gulp) middle age.

I digress.
Sexting is really not a thing for my generation (feel free to disagree and share-I dare you!) but for some reason, the endorphins, the cuteness of the hat, the HRT, I felt it would be appropriate to take a cheeky, topless shot. Not totally topless obvs -I was after all wearing a hat! This for the benefit of Father of Pearl. Just to remind him.

Sniggering like the  teenager I never was (my version was sensible and religious) I  fortunately texted him before pressing send.

“Are you on your own I have a picture for you”(winky face)

 

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Panicked reply.

“No,NO.NO I”M NOT I’M IN A MEETING!!!!!!”

Thank you, thank you, God that I had the 48 year old foresight to text ahead, specifically as I had not realized all texts run live down the side of the ridiculously large computer screen in the Blue Beck offices.

As my running high wore off remembered. The cloud! It was a thing! We had it! We all shared it including my teenagers!

Frantic texts followed

“Will that picture be on the cloud? Can the children access  it ?Who can see it????

Shit, shit, shit.

“WILLYOUPLEASERESPONDTOMYTEXTS!!!!”

Anyway it was finally sorted, deleted, cleared normal life resumed. I decided as a passion kindler sexting was not for me.

Back in the real world of additional needs.

Pearl receives direct payments for Personal Assistant employment. Every 6 months or so a Family Support Worker comes to visit to check we are using them appropriately and what’s occurring Chez Pearl.

Pearl had, since her last visit taken part in a play, modelling contract or some-such of which I was inordinately proud.

I sat down next to Mrs Family Support to show her the photos.

Scrolling though as you do (note to self never scroll through photos next to someone. At best it’s boring)  I suddenly appeared. Sans top and plus a rather fetching hat.

I have never ever, ever, swiped a phone so hard or so quickly. A blur (I hoped) of pale flesh. Cheeks on fire, I said, with a nonchalance I did not feel.

“Oh my days what was that? I don’t know what the was !”(nice try Pinocchio)

And then, because I’m a really good parent

“What have those kids been doing with my phone?”

Thus throwing into question my parenting of said teenagers.

Did she see?

Did she know?

What must she of thought?

I think she must have, I think she would have known?!

How did the ****ing photo remain on the ****ing phone when I’d deleted it with such assurance?!

Even my tech guy (and he is good) doesn’t know.

The epilogue to this sorry tale of middle aged desire.

My children have not been removed. My husband thinks I’m hilarious. No teenagers saw anything that would have embarrassed me and mortified them.

Better yet the entire staffing  of Social Services has been restructured and we have a new family support worker.

I am a grown up

I am!

Happy Valentines day to one and all!

 

 

Seasons of Change

I see summers of small girls’ past, mine, the Glory’s and my decade old darling

This post appeared  before the summer holiday, on Huffpost

 

The summer holidays are fast approaching. School will soon be out.

The weeks have been filled with trying to cram in as much paid work as possible, organising personal assistants, booking holidays and filling The Glory’s expectant cardboard box with university essentials.

This holiday is the beginning of huge change in our family. One will leave, one will go back into mainstream from special education, and one will enter her last year at a fabulous primary school.

My two girls, the first who has been stymied by acute anxiety, whose perfect 18 year old body she mistrusts, despises and longs to change.

The smallest, full of self esteem, whose body is unpredictable, whose muscles are not trustworthy. I am in awe of what she makes it do, through practice, persistence and sheer bloody mindedness.

My own menopausal body, which has thrown up surprises, moods and huge chemical imbalances. I am in awe of that too, and its production of three independent minded beings.

Perhaps it’s the sense of approaching change, but I am filled with deep unspecified yearning.

My go to strategy at such times is to ramp up activity (half marathon training anyone?) Add a couple of blog challenges, plan career development and start a few projects.

Experience tells me that distraction will work in the short term, but that carrying on at this pace will lead to burn out. The sensible part of me looks around for a cause.

This morning, when I woke up suddenly in the middle of a dream, I realized. It’s Pearl. It’s always Pearl.

In ten years of life together,this child has taught me plenty. We are inextricably linked. She needs me in a way that my other children simply don’t.

Someone once told me that when babies are first born they don’t know where you end and they begin. Having so recently been part of you, they think they still are. They quickly grow out of this stage and make bids for independence.

Pearl is one of the most independent minded people I know, she still seems to believe I am part of her. On tired days she gives me a spoon and uses her hand to guide mine to her mouth. She snuggles deeply into me when life is tough, as if trying to merge straight back through the skin and become part of me again.

I know Pearl’s body like I know my own. By 10 my other two were becoming private, dressing themselves and choosing clothes. Telling me if bits hurt.

I see all of Pearl everyday. Changing soiled nappies, noticing differences in muscle tone. Fighting tight calves into splints. Noticing her body preparing for approaching womanhood – I too don’t know where I end and where she begins. The smell of her hair, the feeling of her in my arms is always present.

Pearl, is non verbal but anxious to communicate. Gesture, vocalisation, the superb PODD book all used daily, permeate our lives. She though would prefer me to be her communication aid, and retains a simple belief in my psychic abilities, which are frankly non existent.

All of this strength of feeling and entanglement is now becoming muddled by her hormonal changes, which are leading to the normal mum/ daughter aggravation, further intensified by her need for me. She wants me, she wants to do it herself. She needs me so she can do it herself. It’s all very emotive.

This may go some way to explain my nightly dreams at present. Every single night Pearl talks.
it is always the first time. It is always realistic, her voice, slightly mangled consonants but clear words. It used to be “Mum”. Now it’s been replaced by sudden nouns describing where we are in the dream, followed by incredulity, growing vocabulary and a sense of wonder and relief.

And then I wake up.

Days filled by campaigning, explaining and ardently desiring equality and a proper acceptance of all, replaced by nights of yearning and longing, for my girl to turn to me and speak.

I see summers of small girls’ past, mine, the Glory’s and my decade old darling

Summers of the future shimmering in the distance.

How will my body change, will it remain healthy enough to carry on caring?

Will the Glory learn to love herself as much as I do?

And Pearl herself? Will my dreams come true, sounds turn to words? Will she live a long healthy life? Will her muscles age well allowing her a measure of independence?

Our bodies, perfect in their imperfections, changing with age and experience and fearfully and wonderfully made.

 

 

If you need extra support with caring commitments join the community at Carers UK

 

Note to Self.

Mornings. Generally I love them. I am the most irritating of people, a morning person.

Today however I  woke up to find depression attempting to sneak under the bedroom door and floor me before I even got started. I will be having words.

The rational, fabulous, experienced menopausal woman would like to address you, default teenager who has appeared unannounced, so sit down, shut up and listen!

You can do it!  Yes, you can write, pitch ideas, speak eloquently in public and (whisper it quietly) keep going with the novel. It’s possible you could make  fair fist of running the country given a chance, you certainly have enough opinions. You don’t however have to do it all today. Actually, just make a cup of tea and sit down. Worlds will still be there to be conquered tomorrow.

People like you. You have friends. Make time for them, they are an investment.These friends think well of you, remember you and even pray for you. If they speak about you behind your back it’s because they are concerned,or possibly because those shoes really don’t go with everything. You are actually quite likeable.

Medication. Not a sign of weakness. Yes I know you just watched the BBC programme about overprescribing but you have a sensible GP who knows you and your circumstances. Some people have not been so lucky. Some people don’t make it. Thank Science, God and Big Pharma for synthetic serotonin.

You cannot second guess what other people are thinking about you. Further, you can’t control it and it’s none of your damn business. Some people don’t like you. That’s OK. You do not  have to be universally liked. It’s life, not Miss Congeniality . What would Mrs Pankhurst say ?

Being the universal fixer is a thankless task. Think carefully before taking it on. Just because you can, doesn’t mean you should. Remember being Chair of Governors? Just that. The immigration crisis? Probably not your problem. Brexit? Definitely not your fault. That tax return however…

Other peoples success is not a reflection on you and your ability. It does not make you an abject failure. You think this is the case because today, and only today your self esteem has dried up. Oh and you’re British you have been bred to mistrust confidence and success. Just get over it already. “Rejoice with those that rejoiceth”

The drive to be internationally recognised? May be this is slightly irrational?  Ambition is good, but  not be completely beneficial in this case.The sad truth is you will die one day. People tend to. Enjoy now. Go to galleries and auctions. Read about ceramics. Argue about politics. Run in the fields. Squeeze your children. Make improper suggestions to your husband. Smell everything especially the coffee. This is it. Now. Just this.

Laugh, laugh and laugh again. Watch a comedy a day. Meet up with people who get you. Drink coffee, eat cake and laugh some more. Try to meet up at least once a year with the geographically distant friends who make you laugh so much wine comes out of your nose. Embarrass your teenagers by mispronouncing pinterest, loudly,in public. Swear randomly at your husband, to shock him. Tickle your smallest child until she can’t breathe and then roll around on the floor laughing with her.

Truly some days will be hideous and some glorious. This sadly is the human condition, and no amount of railing  at the sky is going to change it. Roll with the punches and don’t beat yourself (or anyone else) up when you’re just not feeling it. As Mrs O’Hara said “tomorrow is another day” and you have to believe a woman who looks good in vintage curtains.

 

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Take your own advice. Take care of you. Be kind to yourself. How many people have you said that to this week? Wise words for any day of the week. Listen to them, feel them and breathe them in. You are not immune from this advice-in fact you have followed it in the past and it has worked. Remember?

Give yourself a good hard shake. Put the kettle on. Grab a book and put your feet up.

Normal service resumes after the break.

 

 

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