Adventure Time.

In which Pearl flies through the air with the greatest of ease.

Most primary schools have a school trip, in year 5 or 6. It becomes legendary in the school and is a rite of passage.

Surely a school which caters for children with physical challenges would not be able to do this? These children need wheelchairs,  fancy equipment, medication, help washing, changing and dressing, some are fed through tubes .Far safer to keep them at home on familiar territory doing something nice and gentle like painting, or Muti Sensory activities.

If you agree with the previous statement I have failed, in the last few days, to convey the ethos of Horton Lodge Special School. For this I apologize.

I give you…..Bendrigg.

As soon as they enter the school this children know about Bendrigg. The big ones go there,  assemblies show abseiling, climbing,zip wires, caving.

As a newbie parent at the school, I was astonished.Pearl could never do that! Then I saw videos of some of the least physically able children in the school flying through the air on zip wires, squealing loudly and grinning widely.

And so, as it’s Saturday,and I need to take a small girl to her swimming lesson I’ll say no more, but treat you to some pictures of Action Pearl.

Oh just one more thing, if  you donate to the school PFSA ,or have donated, this is one of the things the money will go towards.

The logistics,training and high staff to pupil ration could make Bendrigg prohibitively expensive.The centre itself is charitably funded, but costs to Horton children are kept low by the PFSAs tireless fundraising. If you would like to help some of Pearl’s friends fly through the air next year (and imagine this feeling if you spend most of your time in a wheelchair) please donate any amount,  however small here.

 

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Important practice for being in small spaces before caving.

 

 

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I know tI couldn’t do this,She went in in her wheelchair, but the spirit of adventure is strong in this one.

 

 

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A brave face here,I saw the video, she was a bit scared at the top.
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Messing about in boats.
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Action Pearl.

 

 

 

 

 

This is part of a blog a day for Horton.

 

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A blog a day for Horton

 

Help?!

In which help is required, and two schools take very different approaches to providing it.

We don’t do neurotypical in my family. As well as Pearl, we also have a son with Aspergers. It’s fair to say our school experiences with him have not always been positive.

Differences were apparent throughout Primary school, but as he hit year 6 and the pointless SATs, his stress levels began to rise exponentially.

His school had just been through a particularly unpleasant Ofsted inspection, and as a result staff stress was high, and the pressure to ensure all achieved, made the tests much more of a focus than they had previously been.

Rab (as he is known in the blogosphere) was having ‘tantrums’ (yes, before diagnosis we thought he was acting up) and was becoming very sad and withdrawn. He also experienced frequent stomach aches.

Busy with Pearl I had put Rab’s previous anxieties down to being a sensitive soul and mildly eccentric (oh my boy I’m sorry) I had not realized that the daily trauma of trying to fit into a neurototypical world, was frazzling his autistic sensibilities.

Finally as depression began to bite him and suicidal ideas were voiced I took him to the GP.  Twice. And was told twice, that I was overmedicalising the situation.

I do hope the fact that I’m known to live with depression did not cause our splendid GPs to feel I was over reacting. I do hope so. They told me he could be refereed to CAMHS but the service was so busy I probably wouldn’t get an appointment, and that the referral needed to come via school.

Some background. At this point I had had children at this excellent primary for 9 years. I loved it. I had been Chair of Governors and knew the staff. School had participated in a study Rab had been part of when he had been diagnosed with anxiety disorder. I asked his class teacher if she would refer to CAMHS with the help of the school nurse.Transition to High School was approaching. The holidays were looming and I was very, very concerned. I needed help.

On the very last day of school, having heard nothing, and assuming it was all in hand,  I asked the class teacher,

“have you heard anything from CAMHS?”

“I’ve discussed it with the Head who feels it would be better coming from his High School”

The High School that hadn’t met him, that did not know his peculiarities and strengths had not seen his ‘tantrums’ in action.

I share this, not to shame the school. It was otherwise excellent. I think in retrospect, Ofsted stress and end of term frenzy all played a part. I also think they had a lot of work to do on training and awareness of Special Needs in  general and Autism in particular, which I’m sure has since happened,  as they have an experienced  Governing Body and a new Senior Leadership Team.

No. I share this in order to show you what busy, overstretched schools are often like, taken up by all the gubbins that Government throws at them, and the admin required more related to school performance than pupil (and teacher) satisfaction.

And now I give you the alternative.

This Monday we had an excellent morning in Horton watching Pearl and her class mates swim, before witnessing the opening of the new school swimming hoist! (Things are a little different in Special Ed! ).

As I left I was grabbed by one of the staff, not Pearl’s teacher, and who in fact has never taught Pearl, although she enjoyed a weeks residential at an outward bound centre (more of this tomorrow!). Pearl is an experienced user of the PODD communication system.

 

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In PODD we trust.

“Jane”

Said this astute individual.

“I’ve been watching Pearl use PODD and I think she is ready for a more high tech version-what do you think?”

Chat followed, and we both agreed.

“Well then, I’ll refer her on to the Specialist Centre, we’ll do it now because we have all the information from knowing Pearl. It  will take High School a while to see how she communicates, but we already know”

Two schools both excellent.

One with Classe of 30 +  can’t take the extra work and hasn’t spotted an issue.

Another with high staff to pupil ratio, and freed  to think inventively about achieving curriculum  goals has volunteered information based on  pupil observation, and initiated extra work under pressure at a busy time.

All I can say is that if I was a teacher, given the choice, I’d work in Special Ed.

If I ran the Government (and frankly I’m a little too busy to take it on)  all schools would have a diversified curriculum and measuring and testing would have low priority at Primary level.

I suspect that pupil mental health would be positively impacted, and teacher burn out greatly reduced.

But what do I know? I’m only a mother.

Come on Secretary of State for Education, lets all #bemorehorton.

 

This is part of a blog a day for Horton.Any opinions are the authors  and does not necessarily reflect those of the school.

Help Pearl leave Horton Lodge PFSA a huge thank you, here.

 

 

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A blog a day for Horton

 

Omm….

In which a group of over excited children fail to spot the difference between yoga and sardines.

Yoga, once a spiritual exercise, has been widely embraced for its calming and mindful effects.

Horton Lodge has a simple but very effective way of communicating what happens in the day, a home school book. Filled in daily by the teaching and support staff, and also used by school nurses and therapists, it is pounced on daily in our house. Pearl is non verbal, so when I have read it we can talk about the day, with the help of the excellent PODD.

I have had a few favourite entries, but by far the most hilarious read:

“Today we started our yoga sessions.We spent the first remembering to stay in our own space on the mat”

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Photo by Burst on Pexels.com

 

Maybe it’s having worked in schools, perhaps it’s because Pearl is my third, but I could hear a world of patience, pain,and mild hysteria emanating from this simple sentence.

The next day was parents evening.

“So” I said.

“How was yoga, did they stay on the mats?”

The class teacher grinned broadly.

“Well we are using a DVD and the whole class (about 8 children of varying physical ability) made for the mat nearest the DVD and lay on top of each other in a big pile”

Now I go to a restorative yoga session every Friday. It calms me, grounds me,and helps me prepare for the whirlwind that is Pearl being home at the weekend. Because of this diary entry,dear reader, at the beginning of my weekly session,as I start to relax I hear in my head “remember to stay in your own place on the mat” and shake silently at the mental image it conjures up.

Namaste.

 

This is part of a blog a day for Horton.You can find out more about the school here .and help Pearl show her appreciation with a donation here.

 

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A blog a day for Horton

 

Society.

In which I propose we all be more Horton.

So here we are a bunch of sentient animals muddling along on a small blue planet. To help us pass the time, we make rules, create leaders and invent cultures.

After countless centuries of development what have we achieved on our small island?(The UK to you and me).

Fire.

The wheel.

Art, written language, the printing press, literature, public sanitation; these are all great things.

Public services, the NHS,  free education. Simply splendid.

Democracy, Government, local and national, to help manage the money system we created. Generally these things should enable us to live comfortably and safely with our neighbours. On the whole they do.

Inequality still exists on a huge scale, and without becoming too political is largely the result of the capitalist system we’ve chosen to live by. (Which is remember only a concept we invented).

As a model of where our values should lie I give you…

Horton Lodge Community Special School!

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Achievements are celebrated.

People help each other.

Elders impart knowledge to the next generation, keep them safe from harm and teach them the right way to be part of a wider group.

The more vulnerable are given extra help, but are also helped to use everything they have to give back to the community in whatever way they can.

Individuals within the community have a clear sense of their own self worth and how they fit into the wider community.

And when children leave education….

I fear they come up against historic prejudices about disability and cognitive difference.

They may hear labels used to describe them that are not life affirming.

As they are often unable to earn, they are often treated like a burden to the wider community and State.

They are treated like second class citizens.

There is no public moral outrage when they die in care or in the Health Service, their needs are sidelined because their own intrinsic worth to all of us is not recognized by the “Big Society”

They can’t use toilet facilities as they are not routinely provided for those who need Changing Places.

Poor access on public transport and in towns limits and isolates.

People do not help each other.

In short they are disabled by society.

Shame on us. Shame on our leaders. Shame on us all for allowing this to happen.

Being encouraged, helping each other, being kind, making paths straight for the road ahead, these are the basic requirements of a fair and just society.  If they are not followed we all suffer.

Tell them. Tell our leaders, tell each other.

Be kind.

Value peoples talents.

Do not judge an individuals worth on ability to earn.

Practice Pearlfulness be kind eat cake.

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Be more Horton.

This blog is part of  blog a day for Horton. You can donate here.

 

 

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A blog a day for Horton

 

Questions. Questions?

In which we impart the amazing truth that SEND children do receive an education!

When you fall pregnant, people ask you extraordinary questions. “Was it planned?” was perhaps the most insensitive, but if that baby has a disability or other needs peoples self monitoring really takes your breath away.

Thus, on a weekday in term time I am regularly asked “where’s Pearl?”

I know I’m not alone in this, and I can’t quite work out why.

Perhaps the wider public only see SEND children “in extremis”on DIY SOS or Children in Need. Maybe they think that these children are ill, lying in invalid chairs, and being kept out of the sun? Or are they permanently hospitalized? Seems unlikely that they believe that Pearl is at home with me, while I home educate her, as it must be obvious I have the patience of a dead hedgehog.

I’ll let you all in to a little secret, you may not see Pearl in the local primary, but that is because  she is busy honing her leadership skills at her excellent special school Horton Lodge.

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Children with additional needs are in fact children too! Who knew ? They laugh, cry and demand attention just like their  neurotypical friends, and like them, they mainly go to school! They may miss more lessons because of medical appointments, they may fall ill more often, and more severely. When they are well, off to school they go. It is (as I told my older two when they didn’t want to go in) the law of the land.

Historically Special Schools kept children occupied during the day, the best obviously achieved more, but expectations were not high.

Several decades ago, during my SALT training, schools were separated into Moderate Learning  Difficulties, Severe Learning Difficulties and Physically Handicapped.

Shortly after this integration became the gold standard and many specialist special schools were closed to allow people to be taught together in mainstream. Unfortunately integration without extra money or training often led to lip service being given to integration, while pupils were isolated in a separate room with a TA. Generic special schools began to cater for the more complex children,and now specialist provision for autism is also on the rise.

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Photo by Pixabay on Pexels.com

What does this tell us about Special Education? Well, like general educational provision it is ruled by the will and whim of the political elite, and similarly affected by lack of resources. Special Schools require Ofsted reports and a Governing Body. They too can become Academies, and also follow the National Curriculum.

BUT, and here’s the thing, they follow a diversified, enriched curriculum.The subject headings are the same, but the means of covering them, and the level at which they are covered, is guided by the individual learners ability and style of learning.

It could be argued that all teachers should be able to do this, and that education should be an enjoyable, enriching path to a lifetimes learning, but that dear reader is to underestimate the vital necessity of league tables, marks and passing and failing  to our daily lives. Well quite.

SEND children are educated in mainstream with TA support, at home by parents with more patience than this one, or Special School with intervention from various therapies and School Nurses alongside the teaching staff.They will learn in a variety of ways, some passing exams and going onto further study, some following a sensory curriculum and learning to react and express themselves in different ways.

A few really lucky ones will end up at Horton Lodge Community Special School,where they will leave with amazing self esteem, a can do attitude and a general belief that they are the equal of anyone. Shouldn’t that be the aim of education?

Does this approach prepare them for the real world? More on that tomorrow…..

This blog is part of a blog a day for Horton.If you’ve enjoyed it a donation to the PFSA can be made here.To find out more about Conductive Education in action check here.

 

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 A blog a day for Horton

 

 

 

In My Life….

There are places I’ll remember,all my life..

Lennon-McCartney 1965

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Change is afoot in this corner of East Cheshire.Not only have we recently moved house (more on this in a future post) but also a small girl of my acquaintance is preparing to move schools.

Pearl has been attending her current school since the age of three. It is simply splendid, and anywhere else will be hard pressed to match it.

Finding your child needs Special Education tends to come at a time when you are already trying to shoehorn your expectations into a new and unusual shaped container that you didn’t order or particularly know how to use.

Developmental milestones? Not met

Speech? Non existent.

Muscle tone and coordination? Not so much.

Walking?

Meh.

Somebody mentioned something called “School for Parents”which ran every week. They took their child and thought it was wonderful.

It sounded good, but at the time we were so swamped with medical appointments, weekly Physiotherapy,the Child Development Centre, and Hydrotherapy. I couldn’t see how to fit it in.It wasn’t  even local, but a half an hour drive into the next County.

Finally totally disillusioned with the CDC, and with Pearl about to start supported sessions at our local nursery I thought we’d give it a go.

Long story short-a terrible first session in which Pearl wept consistently, future friends daughter with Williams Syndrome (who can’t handle loud noises) shouted “stop it Pearl”,and I felt like a bad parent. Two further sessions in which Pearl improved sitting balance(yes in two two hour sessions!)and generally had a blast, convinced me that Conductive Education was our route forward.

“I wish she could go there permanently ” says I.

“Well” from the ever practical Mr PJ.

“Isn’t that what her statement is for”

And it was, and it is and she did!

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Uniform on and not a hair out of place.

For the next two weeks  Pearl’s last at Horton Lodge  I will be writing daily about what this school has meant to us.Partly as a huge thank you to the staff, partly as an aide memoir for my dotage, but also as a request, from us to you.

If you have enjoyed reading my blog, would you consider giving a donation to this amazing organization? It will provide extras for the pupils and be a sign of how grateful we are, that somewhere in the Staffordshire Moorlands,children will be singing songs while working on coordination while we move on to the next stage.

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Fencing?At a school for children with physical disability?Why yes!!

Let me introduce you to a place that feels like heaven and home all rolled into one.

The school mission is  “Working together, achieving potential” At last a place where parents are treated as partners, and even have a room with comfortable sofas to meet in!

The logo on the shirts, one hand helping another smaller hand.

When we first arrived they had school donkeys. Yes really. If you are a parent you will be familiar with the forms you need to fill in as school starts.

One of ours “Do you give permission for your child to groom, feed and ride the donkeys?

Well yes!

And finally (and this sums up everything I love about it), at the end of Assembly, not “The Golden Cockerel” (my 70’s school hymn) or “Colours of Day” (Mr PJ’s) but “Reach for the Stars” by S club 7.

Nuff said.

‘We’ve got to all stick together
Good friends, there for each other
Never ever forget that
I’ve got you and you’ve got me,

So reach for the stars !

Please consider giving something,however small.What a wonderful goodbye present that would be!

You can donate here

Home Thoughts from A Broad.

In which I, the Broad in question, dispense advice in a thoughtful and non hysterical fashion.Yeah right.

This post was initially published on Firefly Community. You can find the original herepexels-photo-302810.jpeg

 

As part of an occasional series designed to make you feel better about yourself I bring you:

Things I have done and regretted, to save you the bother of trying them.

 

If you too are attempting to juggle a career, various pets and an assortment of non-typical children, you probably find yourself at the bottom of the pile.

‘Me time’ may involve going for a quick wee.

It is l worthwhile making time for yourself, but keep your eyes open, your wits about you, forward plan and be aware of your environment. If not,you may find yourself:

Brushing your teeth with Savlon.

It is in a blue toothpaste like tube, it squeezes out onto your toothbrush in a white toothpaste like way. It is NOT however, nor does it taste like toothpaste. Despite probably making your mouth antiseptic and germ free it leaves your teeth feeling furry, like a bad hangover. Not one to try.

Applying Sudocrem to a small persons nether regions and leaving it in reaching distance.

The bonus of this is a quick indication of how far said small persons fine motor control, reaching balance and general determination has progressed, not easily measured on a standardized developmental scale.

The flip side is having to remove the zinc based white substance from the individual’s (let’s call her Pearl) hair, eyes nose and all furnishings and room décor.

On the last occasion (no I don’t learn from my own advice, yes it has happened more that once)Pearl went to school with the pallor and demeanor of a cheerful eleven year old Goth.

Putting Contact Lenses in without fully rinsing the soap from your hands.

From a distance it probably looked like I had perfected a new hip hop dance style, followed by a sudden realization of my own mortality and prolonged weeping.

Apologising for things done or requested

It weakens your case and is often a female default. Think, would a man do that? No? Then don’t. People may call you bossy rather than assertive, but frankly who cares?

Caring too much.

Not about your significant others, or your non typical offspring but worrying about what people think of you, your face, your hair, your opinion your child’s screaming.

Try not to wait until the advanced age of 47 to stop caring about these things. It’s a waste of time, you cannot control what people think of you, and chances are it’s not even what imagine.

Generally speaking I couldn’t give a F**.. fig (obvs)

(See also taking yourself too seriously)

(although not your opinion which is valid and you are entitled to)

In Conclusion.

Life is too short to:

  • Drink bad coffee
  • Completely avoid sugar
  • Spend time with people who don’t get you
  • Persevere with therapies that make you or the child miserable
  • Or eat olives (that might just be me)

 

Please feel free to step lightly into the carefree future.

You are most welcome.